Two Out of Three Rare Disease Patients in Asia-Pacific Do Not Receive the Best-available Care, According to an Economist Intelligence Unit Survey
Knowledge of rare diseases among healthcare professionals is lacking: o 34% do not know if there is a definition for rare diseases o 35% do not know if there is a national rare disease policy 14% of healthcare professionals report never encountering a rare disease patient Better coordination between disciplines and across borders is needed to ensure every rare disease patient receives the best care available […]



